Getting involved in research  – congenital heart disease

Getting involved in research – congenital heart disease

Every year over 5,000 babies in the UK are born with congenital heart disease we define congenital heart disease as a disease of the heart that is identified before birth or present at birth imaging research has been key to advances in care and has led to more children with heart conditions surviving into adulthood […]

Read More »
Fetal Cardiac Intervention – Lorenzo’s Story

Fetal Cardiac Intervention – Lorenzo’s Story

We had our 20 week ultrasound. All of the blood wasn’t flowing the correct way out of the heart. We had to have some discussions that no parent wants to have. Should we not do the procedure? Should we let him be born? They said your son qualifies for this intervention. Though some people are […]

Read More »
One Boy’s Rare Disease Brings Gene Discovery

One Boy’s Rare Disease Brings Gene Discovery

{rtf1ansiansicpg1252cocoartf1038cocoasubrtf360 {fonttblf0fswissfcharset0 Helvetica;} {colortbl;red255green255blue255;} margl1440margr1440vieww9000viewh8400viewkind0 pardtx720tx1440tx2160tx2880tx3600tx4320tx5040tx5760tx6480tx7200tx7920tx8640qlqnaturalpardirnatural f0fs24 cf0>>Peggy: MASON’S DAD RECORDED page THIS VIDEO THE MOURN HIS WIFE TOLD HIS SON A SAN DIEGO RESEARCHER FOUND THE CAUSE OF HIS RARE AND LIFE THREATENING DISORDER.>>AND I KNEW THAT THERE WAS ONE IN YOUR BODY THAT WAS HAVING ALL OF THESE PROBLEMS AND COULDN’T FIND IT […]

Read More »
Congenital Heart Disease – Wyatt’s Story

Congenital Heart Disease – Wyatt’s Story

>>Look. My broken heart.>>We went to our 20-week ultrasound, and she immediately knew that he had a congenital heart condition, Tetralogy of Fallot. It all happened so fast, that we didn’t even know what to think. Look how small you are. We wanted to have the support of family around us, and we also heard […]

Read More »
Medical Myth – Adult Congenital Heart Disease cures. Penn State Health 2

Medical Myth – Adult Congenital Heart Disease cures. Penn State Health 2

This is a very common misconception. Not only amongst patients and families but among many physicians. Think of congenital heart surgery as a palliative procedure, adults can often have occurrences of complications that were there in childhood, new complications or something entirely different. Hence, the importance of seeing your ACHD specialist and your ACHD specialist […]

Read More »
Overview of fetal cardiac interventions

Overview of fetal cardiac interventions

(bright music) – We perform two different types of fetal cardiac interventions. The first is for fetuses who have a narrowed aortic valve that look like they may develop hypoplastic left heart syndrome, which is a heart problem where the left-side of the heart is underdeveloped and the right-side of the heart has to do […]

Read More »
Hemolytic Disease of the Newborn, Animation

Hemolytic Disease of the Newborn, Animation

Hemolytic disease of the newborn, HDN, is a condition in which red blood cells of a newborn infant, or a perinatal fetus, are destroyed prematurely, resulting in anemia. HDN occurs when the blood types of the mother and baby are incompatible. A blood type refers to the presence or absence of a certain antigen, on […]

Read More »
What is hypoplastic left heart syndrome (HLHS)?

What is hypoplastic left heart syndrome (HLHS)?

(gentle music) – Hypoplastic left heart syndrome is a type of congenital heart disease where the left side of the heart is underdeveloped. So in the normal heart, the blood that’s been to the body comes back through two veins to the right atrium, or right upper chamber, goes through a valve to the right […]

Read More »
One In A Million Boy With CLOVES Syndrome

One In A Million Boy With CLOVES Syndrome

JENNY PADILLA: Our child does look different and he was born that way, and we never knew he was going to be able to do all the things that he can do, and he amazes us every day. EILEEN HENWOOD: Victor is like every other 3-year-old. He loves to play with his friends, have fun. […]

Read More »